Monday, August 16, 2021

To the Disabled Students Heading Back to School, I See You

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  Today I came across my 7 th   grade ID photo, in which I am a tiny 12-year-old girl in an aqua tank top, smiling and trying to convince my...
Wednesday, July 7, 2021

An Imperfect Miracle: Tarlov Cysts, Chronic Pain, and What I've Learned So Far

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  When I was diagnosed with symptomatic Tarlov cysts in March of 2019, I was simultaneously terrified and relieved that my pain wasn’t imagi...
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Sunday, May 30, 2021

Uber's Lack of Accessible Vehicles Leaves Disabled People Seeking "Free Vaccine Rides" Behind

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On May 24, 2021, I was excited to receive an email stating that Uber will be offering free rides to COVID vaccination sites from May 24 to J...
Sunday, March 28, 2021

Spotlight on "Social Fitness:" A film by Anna Pakman

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  Written by Kathleen Downes   March 25, 2021   Over the past year, we’ve all had to adjust to “the quarantine life.” The snacks we left in ...
Friday, March 19, 2021

"On A Scale of 1 to 10": Tarlov Cysts, Chronic Pain, and Me

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  It started with a dress.     In the fall of 2018, while trying on a dress for a wedding, I remember feeling like the fabric was pressing o...
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Saturday, January 2, 2021

A Poem About 2020... Because What On Earth Was That?!

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  As 2021 begins, rather than subject you to a blow by blow summary post on social media, I offer you this poem about 2020, a year that was ...
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Sunday, December 13, 2020

Cripples at Christmas cartoons 2020

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  It’s that time of year. 2020 was epically weird, painful, and disappointing for so many… hope I can make a few folks laugh with my Cripple...
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