tag:blogger.com,1999:blog-3287942833314297300.post5089051268638801382..comments2024-02-28T09:29:37.348-06:00Comments on The Squeaky Wheelchair: "On A Scale of 1 to 10": Tarlov Cysts, Chronic Pain, and MeThe Squeaky Wheelchairhttp://www.blogger.com/profile/06173011955812450261noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-3287942833314297300.post-22035408525625197672022-01-02T14:03:35.319-06:002022-01-02T14:03:35.319-06:00Yes, absolutely. Send me a message via the contact...Yes, absolutely. Send me a message via the contact form on the sidebar or email me at kathleendownes93@gmail.com. Happy to help!The Squeaky Wheelchairhttps://www.blogger.com/profile/10258307435726974408noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-31148321297576728272022-01-01T23:19:33.999-06:002022-01-01T23:19:33.999-06:00I am new to this site and to your posts. I must s...I am new to this site and to your posts. I must say that you are gifted with the ability to convey what it feels like to be you. I am a 75 year old woman who has been fighting the battle to have my TCD validated since they it was discovered on an MRI in 2009 and immediately labeled an incidental finding. <br />long story short, I have finally been able to be seen by Dr. Schrot and he is the doctor who I have been waiting for. I have a 6cm x 4 cm Tarlov Cyst at the S2, S3, S4 level and have surgery scheduled for March 3, 2022. At that time e will also remove the bits and pieces of my coccyx that were left behind when a different neuro removed my tailbone. Would you please share with me some of your experience with your TC surgery? Are you glad that you went ahead with the procedure and has it helped alleviate some of your pain? Dr Schrot has said that he feels that I will ultimately see a 75% reduction in pain. <br /><br />Anonymoushttps://www.blogger.com/profile/04303141332466650472noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-90305722861864382042021-03-22T16:42:36.556-05:002021-03-22T16:42:36.556-05:00yes it is. I had 3. One is still there partially b...yes it is. I had 3. One is still there partially because of its tough location. I feel tremendously better but it is a tough road and nerve pain rears up randomly. Feel free to drop an email in my contact form if you need support.The Squeaky Wheelchairhttps://www.blogger.com/profile/10258307435726974408noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-69881389057584989212021-03-22T11:53:29.102-05:002021-03-22T11:53:29.102-05:00Thanks for sharing your TC journey with us. I had ...Thanks for sharing your TC journey with us. I had TC surgery in Dallas (6 cysts, sacral area) this past December. Still recovering, but much better than pre-surgery. TC pain is difficult for people to understand. Nicolehttps://www.blogger.com/profile/13184808224276056281noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-40564503264404049272021-03-21T14:08:48.900-05:002021-03-21T14:08:48.900-05:00thanks so much. The TCs were a real surprise and a...thanks so much. The TCs were a real surprise and apparently have nothing to do with CP (I'm a unicorn!) but having CP certainly complicated the diagnosis process. This is always going to be a sucky thing that happened but I hope I can make something good of it and teach others to trust their own bodies/symptoms.The Squeaky Wheelchairhttps://www.blogger.com/profile/10258307435726974408noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-9062551933440739632021-03-20T21:22:08.665-05:002021-03-20T21:22:08.665-05:00Everytime I read your blog I learn so much -- abou...Everytime I read your blog I learn so much -- about you, about CP, about my daughter with CP, and about me. Thank you for sharing your experiences, challenges and knowledge. I wish you continued healing and self-knowledge. <br />--Madeline, Michal's momM Haimoffhttps://www.blogger.com/profile/06619323925214558785noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-82665567955356113692021-03-19T22:47:23.827-05:002021-03-19T22:47:23.827-05:00Thank you for opening up this trial to me and othe...Thank you for opening up this trial to me and others. Your strength to accept and share and go on means more than I can say.Anonymoushttps://www.blogger.com/profile/02104728089203752934noreply@blogger.com