tag:blogger.com,1999:blog-3287942833314297300.post6257239672277013495..comments2024-03-21T12:57:45.093-05:00Comments on The Squeaky Wheelchair: Cerebral Palsy Isn't Progressive...But It Kind Of Is.The Squeaky Wheelchairhttp://www.blogger.com/profile/06173011955812450261noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3287942833314297300.post-56450139353792292662017-07-02T22:41:55.241-05:002017-07-02T22:41:55.241-05:00My husband has mild CP. I didn't know about th...My husband has mild CP. I didn't know about this right off, and really, until I knew, I couldn't tell. He does walk differently than other people. His legs don't really straighten and his arms stay very slightly bent at the elbows. I met him when he was about 26 and he was very active and athletic. I guess we were both in our prime at that point in our lives. Anyway,now he is 54. He sometimes wakes me up with his right leg jerking in his sleep repeatedly. He is getting more aches and pains as he is less active in sports because he works most of the time and is tired when he isn't working. Doesn't really matter. I love him just the way he is. And you mention your startle response, I had to smile as one thing I find humorous about my husband is his startle response during scary or suspenseful movies. He can not hide his startle if his life depended on it! My husband started in a wheelchair,but I hope he doesn't have to end in one later for his sake. He does like his sports and loves to be active, even if he is a bit stiffer, falls a lot, and sometimes slower than me. He is my soul mate! I really like your blog, and love how honestly you share yourself with others here. That is how we learn about others, how our ability to empathize with a larger group of people develops. Advocating and sharing your experiences with others is a great thing. Keep it up!HeatherELGhttps://www.blogger.com/profile/11243560898834062663noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-79697976127024895812017-06-22T07:26:47.828-05:002017-06-22T07:26:47.828-05:00There may not be much scientific explanation and w...There may not be much scientific explanation and warning to what’s happening to you now as you age, although I’m sure younger people who have CP will be able to benefit from your experience and how you’ve coped with it. I know you are a strong person with good fighting spirit in you. <br />Thank you for such an honest post!Erica Lindemanhttp://pathtomobility.com/noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-72223673452397181952017-06-21T12:49:29.812-05:002017-06-21T12:49:29.812-05:00Thank you for your beautiful writing and bravery t...Thank you for your beautiful writing and bravery to admit these feelings. I struggle with these exact emotions, and it is a comfort to read your blog. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-73808609206053979322017-06-20T15:49:03.400-05:002017-06-20T15:49:03.400-05:00Brilliant articulation - more people need to under...Brilliant articulation - more people need to understand that 'non-progressive' does not mean 'non-changing'. Thanks for sharing - I've reposted on my Facebook pageLisa Gombinskyhttps://www.blogger.com/profile/03884143090997783953noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-19794387305241297662017-06-19T15:18:57.139-05:002017-06-19T15:18:57.139-05:00If you haven't heard of it the documentary &qu...If you haven't heard of it the documentary "Enter The Faun" addresses this issue of symptom progression and startle reflex in CP. <br />http://www.pbs.org/video/2365965577/ (video expires June 25 but movie website is here www.enterthefaun.com ) One of the girls with CP featured in "Enter The Faun" makes her own films here http://cripvideoproductions.com Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-70770503046245702622017-06-19T11:40:31.000-05:002017-06-19T11:40:31.000-05:00Thank you for posting this, I can really relate! I...Thank you for posting this, I can really relate! I too write a blog called life as a cerebral Palsy student if you would like to have a look :)<br />www.cpstudentblog.blogspot.co.ukLife as a Cerebral Palsy studenthttps://www.blogger.com/profile/01900504349052200524noreply@blogger.com