tag:blogger.com,1999:blog-3287942833314297300.post1242939817315947735..comments2024-03-21T12:57:45.093-05:00Comments on The Squeaky Wheelchair: Why Are You So Jumpy?: A Handy Guide to the Moro ReflexThe Squeaky Wheelchairhttp://www.blogger.com/profile/06173011955812450261noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-3287942833314297300.post-19391139849572581412021-04-22T18:59:41.817-05:002021-04-22T18:59:41.817-05:00Dear Kathleen,
Thank you so much for this post. It...Dear Kathleen,<br />Thank you so much for this post. It finally helped me understand my lovely 8 year old daughter Saya.<br />I've always wondered what it was and no specialists could really explain it to me.<br />It's what stops her from walking on her own.<br />Her biggest trigger is moving fur (dogs!)<br />Have you find a way to manage it? I.e. not suppress it but catch yourself when it's happening to reduce the potential danger from it? (Saya chipped her front teeths last time).<br />Thank you so much for writing this with such an up beat mood!Julien Marchandhttps://www.blogger.com/profile/09187704359397388443noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-57021513834597795812020-10-09T14:57:19.867-05:002020-10-09T14:57:19.867-05:00Hi! There is no medication to directly treat an ex...Hi! There is no medication to directly treat an exaggerated startle but mine did improve some when I got an intrathecal baclofen pumpThe Squeaky Wheelchairhttps://www.blogger.com/profile/10258307435726974408noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-66908829349223042092020-10-09T10:13:39.263-05:002020-10-09T10:13:39.263-05:00Is there any medication that helps with this ? My...Is there any medication that helps with this ? My son's reflex is very frequent and strong. I want to help him. Tiffhttps://www.blogger.com/profile/16085490840132348652noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-46157018214954586392019-09-02T23:29:04.768-05:002019-09-02T23:29:04.768-05:00My cousin has cerebral palsy and she cannot walk. ...My cousin has cerebral palsy and she cannot walk. She also gets startled very easily, where even when something like a pen falls on the ground she would shudder. I thought it had to with her CP, and it turned I was right. Very interesting. Anonymoushttps://www.blogger.com/profile/07411003185658142338noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-52582930977040221572018-10-10T23:51:56.689-05:002018-10-10T23:51:56.689-05:00Hi my name is Juan Carlos I'm a person with CP... Hi my name is Juan Carlos I'm a person with CP I also started off really easily or get scared really easily I would like to have a chat with you because nobody understands me but thank you for your coming it made me feelAnonymoushttps://www.blogger.com/profile/03016433123679911077noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-33755871052382163772016-11-05T23:58:37.421-05:002016-11-05T23:58:37.421-05:00Thank YOU. Solidarity, sister!Thank YOU. Solidarity, sister!The Squeaky Wheelchairhttps://www.blogger.com/profile/06173011955812450261noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-1468036010537850412016-11-05T23:58:09.751-05:002016-11-05T23:58:09.751-05:00Thanks! This is why I blog. I love helping people ...Thanks! This is why I blog. I love helping people and connecting them with info. If you ever need advice or a chat, email me in the contact form. The Squeaky Wheelchairhttps://www.blogger.com/profile/06173011955812450261noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-90776716033136708712016-11-05T20:24:42.068-05:002016-11-05T20:24:42.068-05:00Loved this post. Was researching the moro reflex a...Loved this post. Was researching the moro reflex as my 2 year old CP girl startles all the time and what a joy to stumble across this. So well written.Mahttps://www.blogger.com/profile/06103652831511065737noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-40492629448238430382016-07-26T04:25:59.793-05:002016-07-26T04:25:59.793-05:00Hi I have cp as well and this is all too relatable...Hi I have cp as well and this is all too relatable even up to the pain .... Thankyou for making me laugh and have a great day :) Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-58724592391214925112015-04-25T15:23:45.640-05:002015-04-25T15:23:45.640-05:00Thank you! If you have any questions, feel free to...Thank you! If you have any questions, feel free to send me a message in the contact form. The Squeaky Wheelchairhttps://www.blogger.com/profile/06173011955812450261noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-57597797132897299282015-04-24T22:49:06.767-05:002015-04-24T22:49:06.767-05:00This comment has been removed by a blog administrator.PikaCheckhttps://www.blogger.com/profile/04407041056048817161noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-27995116218819740242015-04-24T22:49:01.066-05:002015-04-24T22:49:01.066-05:00Thanks for writing about this! My 2 year old son ...Thanks for writing about this! My 2 year old son has this and it's been refreshing to have a name for it and to know he's not the only one who has to deal with it.PikaCheckhttps://www.blogger.com/profile/04407041056048817161noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-67399823929601420792015-03-02T20:07:09.224-06:002015-03-02T20:07:09.224-06:00LOVE this!! I've been wanting to write a post ...LOVE this!! I've been wanting to write a post about this too, because I've had similar experiences and I was starting to wonder if my easy startling was a CP-related thing. I have one friend in particular who loves to come up behind me and scare me -- and I love her to death, but she keeps doing it, even after I explained that my startle reflex is so exaggerated that her startling me could make me fall! She only means to startle me as a joke, but I think it's hard for people to understand if they haven't personally experienced it. <br /><br />Another thing I've noticed is that if I'm REALLY startled for some reason (e.g., a really loud fire alarm), sometimes my legs will start spasming, and it's really painful...I was wondering if you've ever had that happen to you? <br /><br />I'm so excited to have found your blog (via Tonia's blog), and I can't wait to look around!Khttps://www.blogger.com/profile/16465476805924801942noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-61932189074121081652015-03-01T12:25:34.134-06:002015-03-01T12:25:34.134-06:00thanks Kristen!thanks Kristen!The Squeaky Wheelchairhttps://www.blogger.com/profile/06173011955812450261noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-61236418762674842902015-03-01T12:25:02.063-06:002015-03-01T12:25:02.063-06:00thank you!thank you!The Squeaky Wheelchairhttps://www.blogger.com/profile/06173011955812450261noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-82706833302329607672015-02-28T22:12:48.368-06:002015-02-28T22:12:48.368-06:00This comment has been removed by the author.Tonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-48802619473345643232015-02-28T22:09:08.649-06:002015-02-28T22:09:08.649-06:00You're a great writer....Thanks for articulati...You're a great writer....Thanks for articulating something I understand all too intimately. :DAnonymoushttps://www.blogger.com/profile/05384033761462592150noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-81936100871839356702015-02-28T20:52:14.433-06:002015-02-28T20:52:14.433-06:00My gosh, I adore this post. As a fellow CP blogge...My gosh, I adore this post. As a fellow CP blogger with a healthy dose of startle refle, this is amazing. I wrote my own (less humorous take) on this last summer: http://toniasays.blogspot.com/search/label/startle%20reflexTonia Sayshttps://www.blogger.com/profile/11406280143637741965noreply@blogger.com